Living with a chronic or rare condition often feels like a full-time job that nobody applied for. At ekas, we understand that for many participants, the decision to join a study is about much more than just answering questions: it is about reclaiming a sense of agency.
By connecting our partners with our global patient panel, we ensure that every study is grounded in the authentic, human-led experiences of those who live with these conditions every day. Here is what truly drives patients to share their stories according to our patient recruitment experts.
- Helping others find answers: Patients often participate because they want to help others get diagnosed earlier, avoiding the years of uncertainty they may have faced themselves.
- Shaping the market: Participants recognise that if people with chronic conditions do not take part in research, the healthcare market will never be shaped to benefit them.
- Hope for innovation: Engaging in research provides hope that new, more effective medications or management practices will be developed.
The 2025 Australian Patient Snapshot
Recent data from the Australian Bureau of Statistics (ABS) highlights the environment in which our local participants operate:
- High Engagement: 94.8% of Australians with a long-term health condition saw a GP in the last year, demonstrating a highly engaged patient population.
- Cost Barriers: 8.6% of Australians delayed or went without specialist care due to cost, while 16.1% did the same for dental care.
- The Gender Gap: Females are significantly more likely to engage with the healthcare system, with 87.9% seeing a GP compared to 78.6% of males.
Practical Support and Recognition
Foster Advocacy Partnerships
We actively build relationships with patient advocacy communities and support groups to reach those with rarer conditions.
Leverage Healthcare Referrals
By tapping into a world-class panel of healthcare professionals, we can identify and refer relevant patients who are already engaged in their treatment journey.
Implement Rigorous Verification
Protecting data integrity is paramount, which is why we verify qualitative participants by requiring proof of medication or medical devices prior to interviews.
Personalise the Approach
To maximise response rates, invitations should be highly targeted and personalised to the respondent's specific condition and experience.
Prioritise Human Connection
Spending just a few minutes sympathising with a respondent or hearing their story can significantly improve the quality of the engagement.
As an Australian-based partner with a premium global reach, ekas connects these deeply personal human stories with researchers across the Americas, Europe, and APAC. By understanding the altruistic and practical motivations that drive patients, we move beyond simple data collection to deliver human-led insights grounded in empathy and accuracy.


